The fundraiser was a hit!!!! We made almost $13,000.00 for our little bug!! Thank you to everyone who came out and supported Bailey! I hope everyone had fun! Jared and I were so touched. Bailey will be able to have a great rehabilitation program due to the money raised so we can get her up and back on her feet and living a life free of seizures! I want to also thank everyone who donated and could not make it to the fundraiser. With every ones help it was such a great success. It is our goal to rehabilitate Bailey and if there is any money left over to donate it to the next family, like us that needs a little extra help. Through this journey we have met so many people that are going through or have gone through what we are experiencing now. It has been an extremely hard year and a half, I am looking forward to getting through this time in our life and moving forward in a positive direction. I am so scarred for what is going to happen after Sept. 16, I have not made one plan because I don't know what life will be like at that point. The doctors don't know what our baby's life will be like. We pray for a miracle of a seizure free life with no Medications and no side effects from the surgery. Reality is that we may loose her speech, she is going to forever have a scar on half of her head and down to her ear, and she most likely will be on one medication the rest of her life. But with all of that said I would take all of that to just have Bailey make it one month seizure free!!!
I keep trying to stay positive and people tell me all of the time how brave and strong I am. I don't really see it that way. Inside I am freaking out, ready to loose it any minute and to be honest I am not sure how the two weeks in the hospital are going to go. I know I have my emergency drugs just in case it gets to hard, I also have the most amazing husband anyone could ask for. He is so calm and patient with me. I have cried on his shoulder so many times and each time he just reassures me that everything will be okay. I know he is scarred and hurting inside but he would never let me know. I laugh and tell him he better lock me in the house Thursday night because if he doesn't I am going to run away with Bailey to Mexico and sit on a beach where no one can touch her. I will post updates while we are in the hospital and Baileys progress. I don't ask this a lot but if you could please keep our Bug in your prayers for the next few weeks we would really appreciate it. Everything is going to work out I know it. GOD please just get me through the next month and a half!!
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