Friday, March 22, 2013

Upcoming Fundraisers for Epilepsy Allaince of Utah

Motorcycle Ride

Date: April 6, 2013
Admission: $15 per person -- Includes breakfast and dinner
Pre-Registration: 4:00pm to 7:00pm on Friday 4/5/2013 at Adrenaline Service & Dyno, 475 W. 3600 S. Unit C, Salt Lake City, Utah
Registration: 9:30am on Saturday 4/6/2013 at Addictive Behavior Motor Works, 3638 S. State Street, Salt Lake City, Utah 84115.
Click here for more information
The B.A.S.T.A.R.D.S. B-2 Motorcycle Riding Club will be helping raise money for the Epilepsy Alliance of Utah!

 

 

2013 Charity Casino Night

Date: April 12, 2013
Location: Sheraton Hotel – 150 West 500 South
Admission: $50 per person -- Every $1 donated receives a drawing token
Click here to purchase tickets
This elegant evening includes a sit down dinner, gaming tables, and drawing prizes. The entire evening is fun-filled, all while raising awareness about two important health challenges facing Utahans: epilepsy and brain injury. Dr. Tawnya Constatntino is the Keynote Speaker. Proceeds go to support the services given by the Epilepsy Alliance of Utah and Brain Injury Alliance of Utah.


Jared and I would love to get a table for Bailey! The tables seat either 8 or 10 people!! Who wants to join us?

Epilepsy Alliance of Utah


Today only Utah is having a fundraiser for all NON-PROFITS. Here is a link to help  the Epilepsy Alliance of Utah, if you can. Any donation will help!

When Jared and I were told Bailey had epilepsy, we had no idea what to do or what that even meant. We were lost, confused and terrified. I googled Utah support groups and found this amazing organization. I called Margo (the President) and she stopped everything she was doing to talk to me for over an hour. I can really never thank her enough. She gave us the tools we needed to help Bailey and our family.


http://www.razoo.com/story/Epilepsy-Alliance-Of-Utah

Wednesday, March 6, 2013

3 months and going strong!!!!!

Happy Three months!! YAY!! I can't believe how well Bailey is doing. If someone would have told me that three months would look like this, I would have thought your crazy!! She is growing, learning and running around just like any busy three year would be. Her hair is coming in and we now spike it almost everyday. (She loves it when I do her hair with gel and hairspray, just like her brother Korbin.) I am so excited for her and our family. Life is so different now, we don't have to live in fear of seizures. With each passing day, there is new hope that this nightmare will forever be over, that our daughter will live a life just like her siblings.  This  journey has been an emotional roller coaster, we have been at every point two or three times. These past three months have not been any exception, but this time we are riding on the highest part and loving every minute of it. I still get nervous to make any long term plans, but slowly that is starting to disappear. Our new adventure is Preschool and trying to decide what is the best for Miss Bailey. It's hard to make a choice for a child like bug, when you don't know where she will be in 6 months. I told myself not to stress, but with each passing day the schools are filling up. I still don't know what to do!! But really that is a small issue and overall we are just enjoying this time with a happy healthy little girl, who acts like she has not been through a traumatic thing in her life. I wish I had her ability to just be happy all the time, without a care in the world. It really is a beautiful thing!!