Wednesday, September 18, 2013

What a start to the school year!

                             A few awesome updates to share today.


We are officially down to only one Medication!! YAY!! I'm so excited about this. So far things are going well and we have not seen any crazy activity.


Bailey has also started at both preschools and is loving school for the most part!! She goes 4 days a week, and is not sure if school every day is fun, but tolerates it! She is doing well and so far keeping up with her little friends around her. She attends a special needs preschool Monday and Wednesday and Little Learners on Tuesday, Thursday. She also gets to ride the bus and thinks it is awesome. They come right to our home to pick her up! I was so nervous the first few weeks, but this is the highlight to her week!!





Oh and we can't forget Dance class, It has a huge debate this year if we were going to attempt dance again or wait. But Miss Bailey insisted that she was going to go. She is repeating the same class she took last year, and so far fingers crossed its going well. I haven't even ran out of the room crying yet!! PROGRESS, LOTS AND LOTS OF PROGRESS!! I love this, last year we had a hard time with forward progress. Bailey would be learning and catching on to things, and then a bad seizure week, and we would start over. Not anymore!! 9 months seizure free and still going strong.




Now that we are on this new Journey of finding life without epilepsy, and making up for the damage that is has caused, I want to share of few of my new favorite things. The biggest one for me is introducing Bailey to new friends or care givers and say "oh see that silly little girl running over there, yep she is mine", instead of " Hi, this is my Daughter Bailey and she has epilepsy. When you have any kind of disease that takes over your life, its hard to not become that. It's hard to have any identity other than the kid with seizures who can't get down because her mom is a nervous wreck. Yep that was us, and that is how I always introduced ourselves. I no longer have to share it to everyone who comes in contact with us, because so far they are gone!!


The journey keeps going, and so far its going in the best direction I could have imagined. Bailey sure is one of a kind kid, who keeps me laughing all day long. I don't want to get to ahead of myself, but a year is coming up this December. I want to plan a Happy ONE Year of having your life back party! I also want it to be a thank you party for everyone who has helped us get where we are today. I don't have a ton of details yet, but I will get the ball rolling.  It's going to be simple but open to all who wants to come and see Bug and let Jared and I personally thank you for your support!! Stay TUNED!!