Surgery Update!!

They moved Baileys surgery up to the 16th of Sept. for the first one and the 23rd of Sept. for the 2nd one. I think it will be better since they will be on a Friday instead of a Tuesday but still the 23rd is my moms birthday and that is not a great gift!! I can not wait to put this whole thing behind us and get our little Bailey back and moving in the right direction. Also for anyone that would like to come and see us I will be posting updates on how she is doing and which room we are in during the stay. I know Bailey would love to see familiar faces during her stay and so would Jared and I. It gets a little lonely up there and this time we will be there for 2 weeks instead of just the normal 2-3days. Thank you again to all of our friends, family, co-workers, and bosses for supporting us and helping our family out during this time. We have been so touched by the love everyone and shown us. I am always being asked "what can I do to help?"" What do you need?" "How are you?" I am not sure if we would be able to make this choice and do what is best for our little baby with out all of the encouragement we have had!!

Finally and update!

I have been so bad about updating  my blog the last few weeks. It seems like I have so much going on with the fundraiser that I forget about everything else!! Well the kids are swimming with Jared tonight, (yes he decided to take all of them to hims moms swimming pool) so that leaves me with a quiet house and time to think. For the most part things have been going really well with Bailey. The doctor appts. have slowed down, the seizures and have slowed down and she seems to be adjusting well to the new medications. She is still on three medications and at high doses of all of them so that really takes her out until after her nap. But around 3:00pm every day you better look out because  she is on a mission to get into everything. I forgot about the terrible two's and since she is only having 2 to 3 seizures a day now she is acting more and more like a toddler everyday.  I am so thankful that despite everything  Bailey has to go through on a daily basis you would never know she had anything wrong if you saw her from 3:00-6:00 everyday. I am happy for those 3 hours when she can just be a normal child. The last two weeks have been great, Bailey even made it two days without one seizure. I always get my hopes up that we have found the magic cocktail and that we have our baby back but then days like yesterday and today bring me back to the reality of this awful world she lives in with epilepsy.
I am creating this slide show for her fundraiser night and I found this poem that just made me loose it and yet brought me so much peace as well. I thought I would share it with you.

The Child, Yet Unborn

The Child, yet unborn,
spoke with the Father,
"Lord, how will I survive on the world?
I will not be like other children,
My walk may be slower,
My speech hard to understand,
I may look different.
What is to become of me?
The Lord replied to the child"My precious one, have no fear,
I will give you exceptional parents.
They will love you because you are special,
Not in spite of it.
Though your path through life
will be difficult,
Your reward will be greater.
You have been blessed with a
special ability to love,
And those whose lives you touch will
Be blessed because you are special."
(author unknown)

I think about this poem so much and how true it is. Bailey has taught me so much about patience, unconditional love, what life is like for those who have special situations that may draw attention when they are out in public. I watch my two older kids with their sister and how they handle themselves when she is having a seizure. We laugh because I sometimes think Korbin has no idea that his sister is any diffident. He just looks at her and says "oh Bailey is having a seizure mom" and then I run and grab her and he goes on playing like nothing is wrong. Our oldest Madison is so sweet with her baby sis. She is so concerned for her and each time she has a seizure I see how scared she gets. The very first time we went to the hospital with Bailey in May 2010, Jared's mom was at our home watching the kids while we were at Primary Children's. It was our first night there and I received the most frantic call from Madison. She was hysterically crying and I could not console her to even hear what was wrong. Finally after about 10mins of listening to her cry I figured out that our dog Addie, had a seizure while Madison was putting her to bed. (YES OUR DOG HAS SEIZURES TOO!!) Addies seizures were much worse than Bailey's seizures at that time, the dog would seize for several minutes and just cry after and not be able to walk or even stand up. So here is my sweet Madison watching her dog seize and having her parents gone with her baby sis in the hospital with seizures. I hung up the phone with her and just cried and cried. I felt so torn I knew Madison needed me that night to reassure her that everything was going to be okay and yet the baby needed me to hold her and reassure her too. I called Madison back and she was so brave and said "I am okay mom, stay with Bailey!"  ' Now after watching Bailey have hundreds of seizures I see Madison teaching her friends what to do if Bailey has one and to not be scarred and explaining to them why her sister is so special. I love that. Bailey has taught us all so much about what we all take for granted and that is being happy, healthy and normal!!
Well I will post again soon and can't wait for the fundraiser! It is going to be so much fun and hopefully I can pull it together ha ha.