Sunday, September 18, 2011

Surgery!!

Well the day finally came and it was not easy. The week leading up to the surgery was one of the worst weeks I have ever experienced. Bailey stopped having a lot of seizures so Jared and I were so confused if we should go through with the surgery or wait and see how this all plays out. After days of phone calls to our team of doctors and a visit to the hospital for one last MRI and appt. with the surgeon and epilepsy specialist we made our decision continue to move forward with our plan. Our family was a mess Thursday night. I was snuggled up with Korbin and Madison on my bed just crying our eyes out as the kids kissed their sister good night and gave her the cards and pictures they made her for the big hospital stay. After staying up until 10:00 with all the kids we finally put them down and packed the bags.
The morning came fast and we had to be at the hospital at 5:45am. Bailey was the first surgery for Dr. Kestle and they were right on time. We gave our sweet baby a hug and a big kiss at 7:25am and at 1:25pm I was back with my princess. Bailey did amazing during the surgery, we were updated every hour and half on how she was doing and where they were in the surgery process. They had one little episode at the end of surgery where they think she had a seizure. Her heart rate went up and her blood pressure dropped. They gave her a little blood and sent her over for a CT scan to make sure everything was placed correctly. In the ICU Bailey was so brave. She woke up so unhappy and begging for me to hold her but we were able to calm her down and she slept. After her nice long nap our little bug was back and happy. She kept all of the nurses busy with her crazy throwing skills. Everything in the crib was thrown out over and over again. She LOVES that game. We spent the night in ICU and I actually got 4 hours of sleep. In the morning Bailey moved to her new room on the 2nd floor in the Neuroscience area. This is where we have stayed a few times before. They gave Bailey a great room and the best part we have a bathroom!!! The Surgeon has been in a few times each day to say hi to Miss Bailey and is amazed at how well she is doing. When he came in she said look ouchy and pointed to the band aid on her foot from one of her IV's and he started to laugh. It must be great to be 2 and think your ouchy is on your foot and not the big wrap on your head that has wires coming from every which way. I love that baby. She is amazing, brave, happy and so darn cute! The only thing right now that looks a  little out of whack is her eye. We have lost her little left eye and it is so sad to see. She just keeps rubbing it but never crys about it. It truly is amazing how well she is doing. When she is awake she is busy and happy with no idea they just cut into her brain. So far she has had two seizures captured on the EEG. They look great, the quality is amazing and our Dr. Filloux comes in every time and tells Jared and I where they are and how impressed he is with Dr. Keslte and what a great job he did in the placement of the grid. We will be here until Friday waiting for more seizures and playing  with our little bug for anyone that wants to come see us. She looks a bit swollen but other than that she is just plain Bailey with a cute white hat!! Love this little girl I just wish I was as brave as she was!!!!!

1 comment:

  1. Thank you so much for sharing the details! I have been praying and will keep praying! So, what happened to her eye? Can she still see out of it? Is it wandering? I am so glad that things went well. Please keep the updates coming! Also, please let me know if I can do anything for you at all. Love you guys!

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