The news we have been waiting for!!

Wow has it been a long two weeks in the hospital! I am so happy we get to leave on Friday. Only two more nights!! Yay!! Today is Halloween, and since Bailey can't leave her bed the staff tick-or-treated to her room.  They did an awesome job for all the kiddos on this floor that can't leave.  It is hard to be in the hospital for a Holiday this is the most home sick I have ever been.  It has been a hectic  and hard week. Since the surgery all we do is sit and stare at Bailey waiting for a seizure or watch the doctors parade in and out with no new information. It will seriously make you go crazy. I am officially there!!! I think the nursing staff are counting  down until we leave too! :) But finally after two weeks in the hospital this time and a week in September, so a total of 19 days of testing we officially have an answer!! It is great news! They have found 2 locations that are the  starting points to the electrical storm inside Bailey's head. These two areas are constantly misfiring and always spiking even if she is not seizing.  This is where it all starts, and then within 20 to 30 seconds it attacks the motor area and language area.  The first area is right on the edge of her first resection, and the second area is in the insula, the area beneath the the frontal and temporal lobe. They say that the insula is sometimes one of the hardest spots to find.  Both of these areas are safe to remove however the insula is a little more tricky since it is deep inside the brain. According to the Doctor he will peel back the brain like an orange to get to this area. This part should take around 2hours.  (I am not sure of the total surgery time) Overall everything that has come back is good news. They only obstacle we face is her speech. We are removing around that area and if it has not relocated itself already we will see some vocabulary loss. She might also experience some weakness in her right side. Her speech and weakness will come back with time and therapy. I feel very good about what they have found and all of the testing we have done. They have checked and rechecked to make sure they feel confident this is what we need to do to give Bailey her best chance at life. So now we have scheduled the next Surgery for Dec. 6th. Yep that is right we leave to go home on Nov. 2nd and come Back to the Cleveland Clinic Dec. 3rd for another 13 day stay!!! This is all a little overwhelming so I am not sure exactly how to feel just yet. We are excited that all of the tests show the same spot without any questions. This journey has been such an experience (One I would prefer not to do again) not only have I learned so much about the brain and this amazing Clinic but that when you have to do something you are stronger than you think. I am so excited and extremely nervous for this next surgery. But I know its the right thing to do and the doctors here are amazing!!!!!! I am so happy we adventured out of our comfort zone and came to get a second opinion. This second opinion is going to change my babies life!!!! Thank you Cleveland Clinic!