Happy Doctor Visit today

Bailey had a visit today with the wonderful Dr. Filloux. I was a little nervous for this appointment  because I didn"t know what he was going to say. I had called him Feb. 28th to tell him the good news about Bailey making it one month seizure free, and from there his office called me back and said "he wants to see Bailey". I was happy to hear this since I look forward to asking him all sorts of questions.(he really should see us more because in the three month waiting period I come up with A LOT of questions!) He was great today and happy for Bailey and for her turn of events.I love how funny Bailey is when we go to see any doctor, she always says to them when they walk in.."no owie, no owie". So cute I need to record it and put it on the blog. It makes me laugh every time. He told her no not today and she was then relaxed and even let him measure her head.WOW no one can touch her head.  Like the epilepsy world he had no explanation as to why they stopped or if it was the surgery, medications or both. REALLY!! Still no answers. He talked to us about trying to take her off Vimpat since he feels it has not done much, (I was happy when he chose that one because it is 158.00 a month!) overall we do not feel comfortable yet  making the changes but if she is still seizure free come 6months we will give it a try. He says the problem with dropping a medication is you don't know if the seizures came back from the medication decrease or if her seizures come out of the "honeymoon stage"... is there anything easy with epilepsy!! Either way I hope she makes it 6months and I really really hope we can take her down to only two medications a day. Dr. Filloux was very encouraging today, We have never walked out of an appt. feeling very good, so today was a first!!! He had so much confidence that Bailey was on the right track for a seizure free life!! I love to say that!!!! Things are just getting better and better. She really is amazing. I just love her so much, and so proud of her for everything she has had to overcome! Next up we have to do blood work tomorrow to check her liver and Depakote level and then April 10th we are going back to Primary Childrens for another EEG. Bailey really does not like the EEG testing because they have to put so much on her head and she they have to hold still for a long time, but this one is only for an hour and we don't have to spend the night!! That is awesome!! 

Thank you for reading!! Have a wonderful night!