I just got the best call today! After a few weeks of phone calls and lots of paper work, our insurance approved us to go to Cleveland. But that is not the good news, not only did we get approved but they will pay our in net work benefits for the out of net work doctors!!! This saves us a lot of money! This is good news since it sounds like we will be there for one week in Feb. and then 2-3 weeks for her surgery. We also have to go back for a 6month post op and 1 year post op. So we will be traveling!!! I am so excited for Cleveland. I also received our schedule for the week.
Day 1 Check in,psychiatric evaluation, MRI, and EEG.
Day 2 MEG Scan
Day 3 Pet Scan
Day 4 more monitoring with the EEG and talking with doctors about tests
Day 5 plan for the future and going home!!!
I can't wait to get this week over and find out what is next. I am nervous but so so relieved that at least this is all taken care of and approved. Now if I just could skip the plane ride I would be feeling better. I hate flying and then adding a crazy toddler that has a small seizure issue, well it will be interesting. The total trip will be about 7 hours. YIKES!! But we can do this. Just one more thing I have to keep telling myself will be okay. Wow that list is getting long.
We also had to increase Baileys meds tonight :( she is doing okay but not great. So hopefully we will get some good results. (but not to good we need her to have seizures for Cleveland)
Happy Wednesday Everyone!
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