The doctors Appt.

We met with Dr. Filloux (Bailey's Neurologist) today about going further with surgery and her PET scan results. The good news is the PET scan showed what the other tests have shown that the seizure activity is all in the same area. The bad news is we still do not have an exact location. Dr. Filloux feels that we are at a point that we should go further with the surgery since we have tried so many medications without success. So now we are faced with the challenge, getting a second opinion  at the Cleveland Clinic or trust we are in good hands and schedule the surgery. If we went out of state  we would most likely have to stay there for the surgery. I am just not sure how I feel about leaving for a month and trusting doctors I have never met, on the other hand I have heard so many great things about the Cleveland Clinic and their team of specialist. I wish I had a crystal ball that could answer so many questions for me.  I do feel a sense of urgency in making a decision due to the fact that Bailey is just getting worse. It is so hard to see her seize day after day and feel so helpless. Jared and I feel strongly that the surgery is what is best for Bailey at this time. The odds this surgery will work and make her 100% seizure free are about 50-60%. Not great but the odds that she will have better seizure control are much higher. They say that the surgery can make the medication work better so even if we can gain control with medication and she has a seizure a week it sure beats the 10 a day she is having now. We are working on setting up a fundraiser for Bailey's medical expenses and rehabilitation after the surgery. If you would like to help in anyway either with your time or a donation of any kind please contact us at amanda_bates@comcast.net or Jared_bates@comcast.net