I decided to start this blog about our beautiful baby Bailey and share with everyone her journey through epilepsy. She was diagnosed at 10 months old with complex partial seizures and since then it has been a whirlwind of hospital visits, medication after medication and countless tests and doctor visits. Through it all we have learned so much and hope to share some of that with you.
Wednesday, July 20, 2011
Bailey's Fundraiser Pics
Please check out www.jennielynnphotography.com to see Bailey's Fundraiser photos. Jennie was so kind to donate her time and amazing skills to take the most beautiful pictures of Bailey for her big night. I am so excited to share these photos with everyone. Thank you Jennie for your time and supporting our Little Bailey.
Fundraiser Info
A Night for Bailey!!!
Bailey was diagnosed with Epilepsy at 10months old and has been suffering with daily seizures since. Her family and friends are throwing a fundraise to help out with her medical expenses and her Epilepsy brain surgery that is scheduled for Sept. 20th and Sept. 27th 2011.
The event will be held at Noah’s Event Center in South Jordan on August 24th 2011.
Tickets for the event are 25.00 a person and include dinner, casino chips, one raffle ticket and one drink ticket.
Dinner will be served from 6:00pm until 7:00
Assorted Breads and rolls, Baby green raspberry salad, Pork tenderloin with fresh mango salsa, Stuffed Roman chicken, Pasta primavera and dessert buffet.
Casino night will begin at 7:00pm
Games played that night
Black Jack, Texas hold’em, roulette, let it ride, and Craps
(Not played with real money, 1000.00 chips will be handed out at registration table. All chips will be turned in at the end of the evening for raffle tickets.)
Raffle tickets will be sold prior to the event and at the event for 1.00 each.
Top baskets include
Jazz basket with set of tickets and signed basketball.
University of Utah Basket with 2 sets of football tickets and Ute memorabilia
Prizes and baskets from local business. More information to follow.
Bar provided by Skyy Entertainment
Wine, beer, and sodas
To purchase your tickets go to http://www.baileysjourney.org/
Thursday, July 7, 2011
How am I going to do this?
I did what I tell myself never to do. I GOOGLED!!!! My mom always say just google something if you have a question so I did, and now I wish I could ungoogle! I think most of you know that Jared and I have decided to go through with the surgery. So I googled what to expect with Brian Surgery. I was browsing sites when I found Moms of Epileptic seizure disorder. So many brave parents have posted what their children have went through and it is just horrible. I just can't imagine putting Bailey through this. I don't know how I am going to get through this. I am trying to be strong, really strong but everything I keep telling my self on why we are doing this is just not working right now. I had a really good week last week of holding it together but last night I just started to have a panic attack. We have spoke with the doctors and they want us to schedule for Sept. and we will have a firm date by July 14th. Again I don't know how I am going to do this. That is only 2 months away! Just since June 29th Bailey has had two medication increases, 5 doctor appts. and 103 seizures. She has these really awful cluster seizures now where she can have 12 seizures in about 2 mins. and never really comes out of one before the next one starts. So I do understand that this surgery needs to happen but when we are having a really cute moment where Bailey can finally be herself (after nap time) I just look at her and she is perfect and I don't want to change that.
I just have to say one funny thing that happened through this crazy week. Bailey had given me a black nose with a water bottle that she threw, and when took I her in to get her Immunizations our sweet new Pediatrician looked at me and said Is everything okay at home? I looked at him and was puzzled why he would even ask this, and then realized that my face was black and blue. I just started laughing!!
I just have to say one funny thing that happened through this crazy week. Bailey had given me a black nose with a water bottle that she threw, and when took I her in to get her Immunizations our sweet new Pediatrician looked at me and said Is everything okay at home? I looked at him and was puzzled why he would even ask this, and then realized that my face was black and blue. I just started laughing!!
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